nickOliva.com

November 6, 2009

Unprecented compassion in the annals of modern medicine

Filed under: Health — Nick Oliva @ 11:19 pm
Pulse Oxymeter

This is a pulse oxymeter. You put it on your finger and it tells you your current pulse and oxygen level

On the morning of October 2nd, I went to a pulmonologist – a guy who had tried before to get me to do an invasive biopsy to see if I had a rare disease. Back then it sounded to me like a hugely speculative procedure… throwing darts… and I didn’t have it done.

This time, after blood tests and x-rays, he could not conclusively say I had the disease; a biopsy was still needed. But he knew I was in really bad shape and almost certainly had it. I don’t remember the entire conversation that morning. My body was shutting down and I was still exhausted and sleep-deprived.

I cannot figure out why I didn’t go straight into the hospital that morning. I asked the doctor weeks later why I didn’t and he said I told him I wanted to go home and rest. He already had experience of me turning down tests, so he didn’t fight me. Instead, he put his pulse oxymeter on my finger and it read 98 for oxygen… just as the picture here shows. Normal.

He said to me (translated from the Spanish we speak when we talk – he’s Colombian), “You have to get one of these. They’re cheap on the Internet. If you get it at a store it’ll be really expensive.” Then he got a phone call and walked out of the examining room as doctors do.

While he was gone, I called a few places I found on my phone. I found a place that would sell it to me that evening for $300 or $350 – I don’t remember exactly how much. When he came back I told him this, and that I was debating whether to buy it. He looked at me closely, thought it over for a second, and said, “Here. Take mine. You need to watch the top number – the oxygen. If the number falls to 90 and it doesn’t come up again… and you don’t get oxygen quickly or get to the emergency room, you’re going to die.” (This is exactly what he said, but I’m paraphrasing my translation because I don’t remember the exact words).

He explained to me that based on what was happening to me, without the meter, by the time I realized I wasn’t getting enough oxygen it would probably be too late to call 911 for paramedics to be able to save my life.

On the evening of October 2nd… hours after I had taken home Dr. Harvey’s pulse oxymeter… my oxygen reading started dropping and not coming back up. By the time the taxi made it across town to the emergency room at Weil Cornell, my oxygen level was at 90 and sometimes 89. Less than a minute after I walked in, gave them my name, and sat down, someone called me up. Showing them the meter on my finger, I said, “This belongs to Dr. Harvey. He said when it gets to 90 I had better be in the emergency room.”

Immediately, they put an oxygen mask on me and a swarm of doctors were upon me. They pulled up my records and probably saw Dr. Harvey’s notes. In no time at all they decided I would go straight into ICU. Under the circumstances, I may be misjudging time, but I don’t think an hour could have passed before they sedated me and put the tubes down my throat into my lungs.

But I didn’t intend to write about what happened to me that night, I want to celebrate Dr. Harvey for twice saving my life. The second time was as a pulmonologist. But there he was just doing his job.

The first time he saved my life was not as a doctor, but as a compassionate human being. Dr. Harvey first saved my life he moment he made the unprecedented choice to lend a patient he’s only seen a few times – an overly skeptical patient that rejected his previous advice – his pulse oxymeter. More than any of the other things that had to happen just as they did for me to be writing this today, that moment stands out to me. Even at the time, it freaked me out! It was only when he did that that I really woke up and broke through the sleep-deprivation, exhaustion, skepticism, stupidity, and pride, and said to myself, “He believes that I’m about to die!”

It was difficult to thank Dr. Harvey when I was recovering in the hospital. He’s a humble and simple person that just happens to be a very respected expert in a very complex field. And he didn’t dwell on what he did for me.  This is what you expect from a professional with dignity, but I still want to have a feeling that I have communicated my gratitude. I don’t have that feeling yet. I can’t think of what to do or say to feel that. I just have to accept that there’s no real way for me to get this person that did something that came naturally to him to understand that what he did was something truly exceptional.

On the morning of October 2nd, I went to a pulmonologist; with a simple, impossible, unheard-of, compassionate gesture, he saved my life.

November 2, 2009

Chemo Chic: The Final Frontier

Filed under: Health, Nico — Nick Oliva @ 6:44 am

IMG_2436Having posted a hundred pictures of me without hair on Facebook a few days ago, I think people are no longer shocked at seeing me. I’m still shocked at seeing myself in the mirror, though. You just don’t expect a bald guy to look back at you… not when you’re turning 40 next year and have spent your life with thick long-ish hair.

Fall is here and winter is coming… yes, hat season. This week I’m going to a hat store recommended by a friend to see about buying a few hats to satisfy all occasions. But I’m not trying to hide the shiny, pink head… just want to look good and stay warm. I was surprised when I first left the house at the feeling of cold wind on my naked head. Again, it’s not something you’re prepared for.

One thing I did that I’m glad I thought about beforehand was to do all the hair stuff in front of Nico. When the hair started falling out, he wouldn’t have noticed… at 19 months he’s still too little. I made sure he was there and watching when I gave myself the crew cut. Then a few days later, I made sure he was watching again when I clipped it down to stubble – where you could see my bare head. In this way, at least, I was sure he wasn’t going to see me and think it was someone else. Perhaps babies are instinctively able to recognize their parents without hair, but i didn’t want to take any chances.

October 24, 2009

The New Look: Chemo Chic

Filed under: Health — Nick Oliva @ 11:14 am
Chemo Chic

Chemo Chic

The treatments so that I go into remission include a year of chemo. Sometimes people confuse chemo with radiation – not the same thing. I’m just taking a few pills every night. The thing about chemo is that it kills fast growing cells – bad ones and good ones too – which is why people often lose their hair.

I’ve been shedding so much over the last few days, the house looks like a barber shop without a broom. I don’t know yet if my hair is just going to thin or if it’s all going to drop – so for the moment, I’m going with the crew cut look. Later, if it starts to look funky, I’ll probably just shave it all off.

During or after the chemo, whatever hair I lose will grow back. A strangely odd qualification of this wherever the side effect is described is that it “may grow back with a different texture or color.”

We’ll see how this progresses. This was a homemade “do” with clippers bought at the local drug store. I did part of it and Andrea finished it off. Not bad, I think, for the first time I cut my own hair!

October 22, 2009

Playing with my son after a long stay in the hospital

Filed under: Health, Life — Nick Oliva @ 9:48 pm
Tags: ,
"Sleepe after toyle, port after stormie seas, ease after warre...."
         - The Faerie Queene, Edmund Spenser

… and playing with my son after a long stay in the hospital.

There’s something magical about returning home to the ones you love.

I was three weeks in the hospital – though I was unconscious the first ten days in ICU. The last five days I was in a private isolation room getting over the pneumonia I contracted for having been on a ventilator for so long – it’s what happens in hospitals. During that time I was also building up my strength and learning to walk with a specially cut shoe for my left foot and crutches – since the super-deluxe, advanced technology ICU bed’s devices for keeping my limbs from being in the same position for too long actually created a blister the size and shape of a computer mouse on the bottom of my left foot. I am not, by the way, exaggerating the size of the blister – not one of the hundred doctors and nurses I saw said they had ever seen anything like it.

I was discharged this afternoon and got home around 5 pm. A couple of hours at home and the hospital feels months away: the magic of returning home. Port after stormie seas….

Thanks again to everyone that has reached out for the kind thoughts. There are side effects from the meds I’ll be on over the next year that may become noticeable – so nobody be too surprised. However, I consider this episode over and don’t really expect to go into it again. My plan is to go back to posting silly things and pictures of Nico… and, of course, heckling my brother on Facebook. ;-)

October 20, 2009

I ask that my brother be my keeper

Filed under: Health — Nick Oliva @ 11:37 am
Tags: , ,

And the Lord said unto Cain, Where is Abel thy brother? And he said, I know not: Am I my brother’s keeper?
And he [God] said, What hast thou done? the voice of thy brother’s blood crieth unto me from the ground.
– Genesis 4: 9-10 (KJV)

UPDATE Nov 2, 2009: I’m not religious, of course, but I used a religious reference that I didn’t cite and not everyone gets or remembers.

I’m writing this from an isolation room at New York Presbyterian Hospital. Through bad luck, bad decisions, bad timing, a little bit of denial, conflicting opinions and statements of doctors, and more bad decisions caused by sleep deprivation brought on by the disease’s symptoms, I wound up at the last stage of a rare, fatal vascular disease.

I’m checking out in two days after more than two weeks in here. The disease is now controlled and I expect to live a perfectly normal, somewhat over-medicated life. I plan to write again about the reasons I’m here and the experience, but this post is about my brother.

Before they tubed me and sent me under, the doctors asked if I had, or wanted to specify, a “health care proxy”. This is a person who is empowered to make medical decisions on my behalf. I said, “My brother, Nelson Oliva.” Then I went under.

Mine was the “case of the week” at the hospital. I’m something of a celebrity. It took many, many teams of many, many doctors to put Nick back together again. All those doctors needed approvals for things I don’t even want to know about. Nelson took calls day and night, called his doctor friends for advice, had his doctor friends call the hospital for details, and kicked some ass whenever it looked like something wasn’t happening that needed to be.

After I was de-tubed, there were plenty of things to deal with and facilitate. Specialists I needed to see. Rehab to schedule… a million things. I’d send Nelson a txt message and a little while later everything was resolved.

Thanks, Sauce [we've always called each other, "Sauce"]. I put my life in your hands and you came through in a big way.

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